The board of directors

 President :
Prof. Claude Griscelli
  Treasurer :
M. Edouard Couty
(Conseiller Maître à la Cour des Comptes)



Founding members :

University of Paris-Descartes (Paris V)
  • Mr Frédéric DARDEL

French National Institute of Health and Medical Research (INSERM)
  • Mr Thierry DAMERVAL

Paris Hospitals (Assistance Publique – Hôpitaux de Paris)
  • Mme Mireille FAUGERE (Executive manager)

French Association against Muscular Dystrophies (AFM)
  • Mme Laurence TIENNOT-HERMENT (President)

Foundation of Hospitals of Paris-Hospitals of France (AP-HP)
  • Mme Bernadette CHIRAC (President)

City of Paris
  • Dr Jean-Marie LE GUEN (Deputy Mayor in charge of public health)

Representatives of the scientists
  • Prof. Corinne ANTIGNAC (Director of the research unit "Hereditary nephropathies and kidney development" - INSERM)
  • Dr Laurent ABEL (Co-director of the research unit "Human genetics of infectious diseases" - INSERM)
  • to be designated

Qualified personalities
  • Mr. Stéphane FOUKS (CEO of Euro RSCG Worldwilde)
  • Mme Louise GUNNING-SCHEPERS
  • M. Jean-Pierre KINET
  • Mme Ulrike STEINHORST
  • Mme Anne-Marie IDRAC

Government commissionner
  • M. Jean-Paul PANCRACIO

Invited guests
  • Maître Robert PANHARD
  • Maître Philippe XAVIER-BENDER